• 50 and Free

    May 9, 2023 by Erin Vipler, MD, FACP
    I met Ms. L at perhaps her lowest point. She had been struggling with mandibular cancer for 2 years and had undergone every treatment imaginable. The chemotherapy made her so weak that she could no longer stand.
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  • The Unexpected

    May 2, 2023 by Lourdes Wiley, MSN, RN
    I started attending Death Cafes, and the unexpected happened….
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  • Denial

    Apr 25, 2023 by Jeff Sung, MD
    “I’m not ready to talk about that, doc.” (In my mind only) “What do you mean you aren’t ready? You have breast cancer with mets all over your body. You can’t walk from spinal mets causing paraplegia. You just suffered a massive pulmonary embolism and almost got intubated. You have terminal illness. All I ask is that we try to determine who would make decisions if you couldn’t. To consider if you would want your ribs cracked and a tube shoved down your throat before you die. Is that too much to ask? How can you be in so much denial?”
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  • Rethinking my miracle

    Apr 18, 2023 by Kristin Moffett Melissa C Palmer, LCSW, ACHP-SW, APHSW-C, JD
    This is the second entry narrated by Kristin Moffett and written by Melissa Palmer to share about Kristin’s experiences navigating the healthcare system with a serious illness. One of Kristin’s goals is to share her story to help others heal and find strength, and so that people going through similar experiences do not feel alone. She also feels passionate about using her voice to educate palliative care community specialists in patient-centered care. In this week’s blog, Kristin shares the part of her story that relates to miracles and what that means to her.
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  • Fear and Shame of Pain

    Apr 11, 2023 by Kristin Moffett Melissa C Palmer, LCSW, ACHP-SW, APHSW-C, JD
    This is the first installment of Kristin Moffett’s story about her long hospitalization, cancer treatment, and quadruple amputation. In this week’s blog, Kristin talks about her relationship with pain.
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  • My Cancer Journey

    Apr 4, 2023 by Kristin Moffett Melissa C Palmer, LCSW, ACHP-SW, APHSW-C, JD
    This is the first of a series of blog entries from a patient who is dear to us at UC Health, and she has given us permission to use her name and her story. Even before her cancer diagnosis, Kristin had a serious injury and she was living with chronic pain. In August 2022, Kristin Moffett was admitted to the hospital with sepsis and underlying Burkett’s lymphoma. Her body reacted negatively to the treatments, and Kristin experienced complications including sepsis. As a result of the complications, all four of Kristin’s limbs became gangrenous and needed to be amputated.
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  • The Dilemma Comfort Feeding Presents

    Mar 28, 2023 by Lawren Love, MD
    The issue of comfort feeding, particularly in dementia, arises frequently in my hospice work. I find myself discussing this topic with caregivers, families and my colleagues. I’m not sure that a concrete definition for “comfort feeding” exists and I see a wide range of how families and caregivers operationalize this concept. The idea of “comfort feeding” or “careful hand feeding” arises usually in dementia when a decision is made to continue feeding the patient for pleasure despite known risk of aspiration.
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  • Parting Gifts

    Mar 21, 2023 by Lynne Yancey, MD
    A faded photo sits on my desk. It used to be tacked to a corkboard in my Dad’s workshop. In it, a sixteen-year-old girl wears a camouflage jacket and a wool ski cap. She crouches in a patch of snow, holding her rifle in one hand, and one of the horns of a large bull elk in the other.
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  • Future Tides

    Mar 14, 2023 by Blakely Winner, RN
    As a graduate student studying palliative care, I am optimistic about the field's future. I have seen firsthand the impact of palliative care on patients and families in my own community and am thrilled to see this medical subspecialty becoming more widely recognized for its value and significance. However, I have also observed the obstacles for progress in this field.
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  • She is too unstable to die

    Mar 7, 2023 by D.S McAninch, MD
    It wasn’t long ago that I received a phone call from my best friend T. His mother had slowly progressive, moderate dementia but was relatively stable. T is her MDPOA and all advanced care planning was carefully documented.
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  • The Miracle of Skies

    Feb 28, 2023 by Anne Camerlengo, MD
    Entering my fourth decade, I was pleasantly surprised to find that I still find complete and absolute wonder while gazing at the sky. Daytime skies- I’m in awe of the different shades of blue and the infinite configuration of clouds and cloud types. Evening skies- how does all that blue transition before our very eyes to pink, orange, and purple? How can the clouds create such stunning shadow shapes?
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  • Why?

    Feb 21, 2023 by Katie Jones, MSN
    I’ve worked with adults for my whole career in health care, but occasionally I will meet with the children of my cancer patients who have questions about what their parents are going through. On this particular day, I was looking into the big, brown eyes of an eight-year-old with her long black hair in pigtails rocking an outfit that I wish I could pull off: purple and pink tie-dye with purple sneakers accented with sequence and glitter.
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  • Home

    Feb 14, 2023 by Kimberly Indovina, MD
    In palliative care, we routinely ask patients where they prefer to spend their last days. Statistically, most prefer to die at home, and in my practice, “home” is certainly the most common answer I hear. What happens, though, when “home” isn’t across town, but rather across the world?
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  • dysp·ne·a

    Feb 7, 2023 by Laura Davenport Reed, MD
    There are few symptoms that those of us without personal experience with a palliative care diagnosis haven’t had, at least temporarily in our lives. Pain, yes. Nausea/vomiting, yes. Fatigue, insomnia, depression, anxiety, constipation, diarrhea, cough, hiccups, headaches, loss of appetite and dry mouth, yes and thankfully temporarily.
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  • Who’s to Judge?

    Jan 31, 2023 by Julia Besagno, RN
    Sitting in a courthouse for jury duty, it’s strange to be here, recognizing the differences in the work that we do. Here, in the court, there is a judge. There is a jury of the general public that helps to decide who wins the case. There is the presentation of the case, the evidence, the witnesses to provide context for the case brought to the court. But when it comes to our work in palliative care, who is the judge when it comes to making decisions about one’s life and the care we provide?
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  • What matters most?

    Jan 24, 2023 by Shivani Martin, MD
    I find myself at a complicated stage in my life where I ponder about what brings meaning to my existence. I spend more than fifty percent of my life working or doing something related to the medical field. Being on the front line during the pandemic and continuing to care for people who are now my age or younger with end-stage illnesses, I question what it will take for me to slow down and appreciate the simpler things that once brought me joy… before it’s too late.
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  • Everyone Needs an Advocate

    Jan 17, 2023 by Carri Schnabel, BSN, RN
    I read this book last week “Queen of Katwe” by Tim Crothers. It’s based on a true story of a girl who dared to dream larger than her circumstances and became the first Woman Candidate Master of chess from her country, and she is not done dreaming yet. If it wasn’t for Robert Katende, a war refugee turned missionary, Phiona would not have known chess existed.
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  • The Right Place

    Jan 10, 2023 by Magdalena Lenartowicz, MD
    When I set out to be a physician, I imagined myself like those old country doctors, with my black bag in hand, going out into the community, creating relationships, telling stories, spending time with patients and their families. So medical school and then my practice were like a big bucket of cold water that was dumped on my head.
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  • End of Year Message 2022

    Dec 27, 2022 by Nancy Robertson, DNP
    As the new year approaches, we at the MSPC wish to stop and take a moment to thank our loyal subscribers for taking the time to read our posts. We wish you all a peaceful, joyous transition into the new year.
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  • Don't Take Away her Hope

    Dec 20, 2022 by Kristen Eisenman
    In 2018, my opinion about false hope evolved through my experience journeying with my stepmother, Ann, throughout a battle with ovarian cancer. Ann was a physician who desperately “fought the cancer” for 2.5 years. She attempted every invasive intervention offered to her. She had multiple pleural taps for her pleural effusions, abdominal surgeries, pleurectomy and decortication.
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