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Prenatally-diagnosed renal failure: an ethical framework for decision-making

Journal of Perinatology: Nature

Sep 26, 2023
newborn foot and adult hand
Jackie Glover, PhD and colleagues in the Pediatrics Department at Children's Hospital Colorado, developed an ethical framework to guide patient care and research for prenatally diagnosed severe renal anomalies. The authors identiļ¬y ethical challenges in communication, timing of decisions and scarce resources. 

The framework addresses shared decision-making, establishing trust, managing disagreements, the child’s best interests, the harm principle, and a zone of parental discretion.  Glover and co-authors believe that operationalization of this framework affords the support needed to provide comprehensive patient and family-centered care for these complex patients. 
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