“one, one thousand…” is an unconventional documentary and a different kind of love story. It exposes the impact a rare and incurable form of epilepsy (Lennox-Gastaut Syndrome) has on a mother and son's experiences of life-long care. Debe Arlook’s intimate photos depict the inner and outer worlds of the relationship between the artist's nephew and sister.
NEWS: "one, one thousand..." is winner of the 2022 Critical Mass TOP 50 Award, an international juried photography competition. An exhibition will be held at the Photographic Center Northwest in Seattle in Spring, 2023.
Read interview with Debe Arlook and Lori Sandler in the 10/31 edition of Feature Shoot. Note: You must enter email to read article.
View discussion recorded on November 1, 2022
Learn more at https://www.debearlookphotography.com/
Lori Sandler is a writer, life coach and devoted caregiver of her adult son, David. David has autism and Lennox-Gastaut Syndrome, a rare type of epilepsy that is difficult to control and causes severe neurological impairment. In the early 2000’s, the intensity of David’s condition and the challenges of his care spurred Lori onto a path of personal growth and spiritual inquiry. In her words, “The lessons of surrender, trust, compassion, self-knowledge and levity have been the greatest gifts I have received from walking this path with him.” Sharing these gifts with others, she now coaches and leads support groups for parents of challenged children.
Learn more at https://www.lorisandler.com
We thank Jeff Lambson at the Emmanuel Gallery for introducing us to Debe Arlook, David Weil for his curatorial and technical assistance, the Epilepsy Foundation of Colorado and Wyoming for their generous support, and Lori and David for their willingness to share their lives and stories.